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Tools for Patients: Data, Technology, and Communication in Patient-Centered Care

Monday, September 21, 2015

This briefing, the third in a series on creating a more consumer-friendly and patient-centered health care system, delved into the issues that patients face as they make decisions about their health care. It explored questions such as: What does it mean for patients to be engaged in their care? What information and tools are available to empower patients to make treatment decisions and manage their care? What are the respective roles of technology, the doctor-patient relationship, and the health care system as a whole in helping patients navigate their care?

If you were unable to attend the briefing, here are some key takeaways: 

Benjamin Moulton, Senior Vice President for Policy and Advocacy at the Informed Medical Decisions Foundation
Shared decision-making is the pinnacle of patient-centered care, Ben Moulton stated. Patients often make different decisions when they are fully involved, as opposed to when they are not properly informed, he added.

Niall Brennan, Chief Data Officer and the Director of the Office of Enterprise Data and Analytics, CMS
Data is essential for analyzing the full continuum of care for beneficiaries, Niall Brennan said. CMS started releasing large datasets in 2013 that include hospital inpatient charge and utilization data, outpatient data, physician scope of practice, and prescribing patterns of physicians in the Medicare Part D program.

Robin Gelburd, President of FAIR Health
Robin Gelburd emphasized that consumers are now center stage with increased decision-making. She added, however, that unless data has clarity, it can be meaningless to the consumer.

Tim Skeen, Vice President of Marketplace Solutions in the Information Technology division of Anthem
Consumers need comprehensive interaction of data and insights they can believe in, Tim Skeen said. Mobile improvements and digital channels are improving transparency and consumer engagement, he continued.

Ed Howard of the Alliance for Health Reform moderated the panel discussion.

Follow the Briefing on Twitter: #Tools4Patients

Contact: (202)789-2300

The event was organized by the nonpartisan Alliance for Health Reform in partnership with the National Consumers League and support from Anthem, Inc.

Transcript, Event Summary and/or Webcast and Podcast

Transcript: Transcript (Adobe Acrobat PDF), 9/21/2015
Full Webcast/Podcast: Full Video

Speaker Presentations

Shared Decision Making: Honoring Informed Patient Care (Adobe Acrobat PDF), 9/21/2015
CMS Perspectives on Transparency and The Use of Data to Drive Patient Centered Care (Adobe Acrobat PDF), 9/21/2015
FAIR Health: Advancing Consumer Engagement and Understanding (Adobe Acrobat PDF), 9/21/2015
Putting Tools in the Hands of Our Members (Adobe Acrobat PDF), 9/21/2015

(If you want to download one or more slides from these presentations, contact us at info@allhealth or click here for instructions.)

Source Materials

Agenda (Adobe Acrobat PDF), , 9/21/2015
Selected Experts (Adobe Acrobat PDF), , 9/21/2015
Materials List (Adobe Acrobat PDF), , 9/21/2015
Speaker Biographies (Adobe Acrobat PDF), , 9/21/2015

Offsite Materials (briefing documents saved on other websites)

Health Policy Issue Brief, The Brookings Institution, 2/1/2015
New Medicare data available to increase transparency on hospital and physician utilization, Centers for Medicare and Medicaid Services, 6/1/2015
What’s New in Health Care Cost Transparency, Altarum Institute, 4/2/2015
Why Health-Care Price Transparency Isn’t Enough for Consumers, The Wall Street Journal, 3/26/2015
Shopping for Health Care Makes 'Cents' for Consumers, Health Care Cost Institute, 2/1/2015
FAIR Health to Create Cost Estimates for Complete Episodes of Care, PR Newswire, 8/6/2015
Shared Decision Making — The Pinnacle of Patient-Centered Care, New England Journal of Medicine, 3/1/2012
Why We're Getting Patient Engagement Backwards, The Health Care Blog, 12/4/2014
The State of Patient Engagement and Health IT, HIMSS, 8/1/2014
Proposed patient access change sparks MU debate, Healthcare IT News, 4/20/2015
AHRQ Patient Safety Tools and Resources, Agency for Healthcare Research and Quality, 4/1/2015
Questions to Ask Your Doctor, Agency for Healthcare Research and Quality, 9/1/2012
Taking Care of Myself: A Guide for When I Leave the Hospital, Agency for Healthcare Research and Quality, 4/1/2010
Blood Thinner Pills: Your Guide to Using Them Safely, Agency for Healthcare Research and Quality, 6/1/2014
A Vision For Using Digital Health Technologies To Empower Consumers And Transform The U.S. Health Care System, The Commonwealth Fund, 10/1/2014
An Experiment Shows That A Well-Designed Report On Cost And Quality Can Help Consumers Choose High-Value Health Care, Health Affairs, 3/1/2012
Cost transparency and consumer health insurance preferences, The Institute for HealthCare Consumerism, 8/17/2015
Health Care Prices Remain A Secret In Most States, Forbes, 7/8/2015
Health Policy Brief: Patient Engagement, Health Affairs, 2/1/2013
How Much Will it Cost? How Americans Use Prices in Health Care, Public Agenda, 3/1/2015
In-Depth: Provider adoption of digital patient engagement tools, MobiHealthNews, 3/20/2015
Issue Brief: Making Sense of the Medicare Physician Payment Data Release: Uses, Limitations and Potential, The Commonwealth Fund, 11/1/2014
New Medicare data available to increase transparency on hospital utilization, Centers for Medicare and Medicaid Services, 6/1/2015
New Medicare data available to increase transparency on physician utilization, Centers for Medicare and Medicaid Services, 6/1/2015
Patient Engagement – What Works, Journal of Ambulatory Care Management, 4/1/2012
The Need For A Comprehensive, Current, And Market-Representative Health Care Cost Benchmark, Health Affairs Blog, 10/7/2014
Value Judgement: Helping Health Care Consumers Use Quality and Cost Information, California HealthCare Foundation, 12/1/2012
Why Does Patient Activation Matter? An Examination of the Relationships Between Patient Activation and Health-Related Outcomes: Abstract., Journal of General Internal Medicine, 5/1/2012


Shared decision-making is the pinnacle of patient-centered care, Ben Moulton, senior vice president for policy and advocacy at the Informed Medical Decisions Foundation, stated at a September 21 Alliance briefing, Tools for Patients: Data, Technology, and Communication in Patient-Centered Care.


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