Sign Up for Email Alerts Visit us on Twitter Visit us on Facebook Visit us on YouTube Subscribe to RSS Feeds


Home > Past Briefings > Briefing Detail Page
 

Briefing Detail Page

Change Text Size:   Smaller Text Size   Larger Text Size   Default Text Size    

Health Information Technology and Privacy: Is There a Path to Consensus?


Friday, February 29, 2008

Promoting health information technology (IT) has been a common thread in the campaigns of the 2008 presidential candidates’ health reform proposals. It is proposed as a means of achieving efficiency, improving quality and cutting costs in the delivery of health care. In addition, there is bipartisan support in both houses of Congress for expanding health IT. Yet, one bill that would do so remains stalled in the House, another in the Senate.

Why do Americans trust IT when they do their banking, make airline reservations, pay their bills, and file their tax returns, but not to access their medical information electronically? Some believe that technology poses a serious threat to Americans’ medical privacy rights; such people would add strict privacy protections to any health IT legislation. Others assert that the privacy risks are inconsequential, and that all health care providers should use electronic health records and participate in health information exchange networks.

What’s the best way to balance the move to electronic health records and other health IT applications, with its acknowledged increase in efficiency, against the need to protect the privacy of individuals’ medical histories? What incentives and regulatory requirements might be needed for more providers to implement electronic medical record keeping? To respond to consumers’ privacy concerns? Can the market alone deliver adequate privacy protections? Is there enough common ground among stakeholders to allow a consensus proposal to advance?

To address these and related questions, the Alliance for Health Reform and the Divided We Fail Initiative are sponsoring a Feb. 29 luncheon briefing. Panelists will be: Jodi Daniel, Office of the National Coordinator for Health Information Technology; Deborah Peel, Coalition for Patient Privacy; and John Rother, AARP. Ed Howard of the Alliance will moderate.

Speakers

Ed Howard, Alliance for Health Reform, Moderator
Jodi Daniel, Office of the National Coordinator for Health Information Technology, Speaker
Deborah Peel, Patient Privacy Rights, Speaker
John Rother, AARP, Speaker

Transcript, Event Summary and/or Webcast and Podcast

Transcript: Health Information Technology and Privacy (Adobe Acrobat PDF), 2/29/2008
Event Summary: Health Information Technology and Privacy: Is There a Path to Consensus? (Word Document), 2/28/2008
Full Webcast/Podcast: Health Information Technology and Privacy

The transcript, full webcast and podcast for this briefing are provided by Kaiser Family Foundation.

Speaker Presentations

Jodi Daniel (PowerPoint), 2/29/2008
Deborah Peel (PowerPoint), 2/29/2008
John Rother (PowerPoint), 2/29/2008

(If you want to download one or more slides from these presentations, contact us at info@allhealth or click here for instructions.)

Source Materials

Groups Push Physicians and Patients to Embrace Electronic Health Records (Adobe Acrobat PDF), JAMA, 2/6/2008
State e-Health Activities in 2007: Findings from a State Survey (Adobe Acrobat PDF), The Commonwealth Fund, 2/1/2008
Privacy, Security, and the Regional Health Information Organization (Adobe Acrobat PDF), California Health Care Foundation, 6/1/2007
Whose Data Is It Anyway? Expanding Consumer Control Over Personal Health Information (Adobe Acrobat PDF), California Health Care Foundation, 2/1/2008
Review of the Adoption and Implementation of Health IT Standards by ONC (Adobe Acrobat PDF), California Health Care Foundation, 9/1/2007
Divided We Fail: HIT Endorsement, Principles, and Supporting Organizations (Adobe Acrobat PDF), Divided We Fail Coalition, 2/1/2008
Health Information Technology: Consumer Principles (Adobe Acrobat PDF), Divided We Fail Coalition, 3/1/2006
Side-by-side Summary of Selected Health IT and Privacy Legislation (Adobe Acrobat PDF), Divided We Fail Coalition, 2/25/2007
Privacy and Security Solutions for Interoperable Health Information Exchange (Adobe Acrobat PDF), RTI International, 12/20/2007
Consumer Partnership for e-Health Position Statement (Adobe Acrobat PDF), Divided We Fail Coalition, 1/1/2008
Coalition for Patient Privacy - 2007 Privacy Principles (Adobe Acrobat PDF), Coalition for Patient Privacy, 1/1/2007
Health Record Banking: A practical approach to the national health information infrastructure (Adobe Acrobat PDF), , 6/21/2006
Wired Act's Sponsors Acknowledge Need for Strong Privacy Protections Which Are Contained Only.. (Adobe Acrobat PDF), J. Pyles, 1/1/2006
Health Information Privacy Protections Under Federal and State Law (Adobe Acrobat PDF), , 10/23/2006
Building a Health Information Network (Adobe Acrobat PDF), Progressive Policy Institute, 5/1/2007
List of Experts (Adobe Acrobat PDF), Alliance for Health Reform, 2/29/2008
Speaker Biographies (Adobe Acrobat PDF), Alliance for Health Reform, 2/29/2008
Health Information Technology and Privacy: Is There a Path to Consensus? (Word Document), Word Document, 2/28/2008

Offsite Materials (briefing documents saved on other websites)

Survey Finds Americans Want Electronic Personal Health Information to Improve Own Health Care (Adobe Acrobat PDF),Markle Foundation, 11/1/2006
Health Information Technology: Efforts Continue but Comprehensive Privacy Approach Needed (Adobe Acrobat PDF),GAO, 6/19/2007
Health Information Technology: HHS Is Pursuing Efforts to Advance Nationwide Implementation (Adobe Acrobat PDF),GAO, 2/14/2008
Threats to Your Genetic Privacy, US News and World Report, 11/16/2007
Health Information Technology: Can HIT Lower Costs and Improve Quality, RAND Health, 1/1/2005
Google to Store Patients' Health Records in Test of New Service, Associated Press, 2/21/2008
How the Public Views Privacy and Health Research, IOM/Harris Interactive, 11/1/2007
Information Technology Comes to Medicine, New England Journal of Medicine, 6/14/2007

Photos

Jodi Daniel, of the Office of the National Coordinator for Health Information Technology -- speaker at the February 29th briefing cosponsored by the Divided We Fail Initiative.

Deborah Peel, of Patient Privacy Rights -- speaker at the February 29 briefing cosponsored by the Divided We Fail Initiative.

John Rother, of AARP -- speaker at the February 29 briefing cosponsored by the Divided We Fail Initiative.

 


Uwe Reinhardt Questions Bundled Payment Savings Prospects


Video (2:58)

A new Alliance for Health Reform video features Princeton’s Uwe Reinhardt questioning whether bundling payments for medical services might actually lead to higher – not lower – costs.

"The ACO's, the accountable care organizations, could create local monopolies that could dictate to you what that bundled price would be, and some of us fear that bundled prices might be even more than what the fee-for-service for that bundle would be today. … You really should align all the payers and say, 'Let us jointly negotiate with the ACOs what those bundles should be so that they cannot divide and rule and sort of make us on the buy side weak.'"

FULL TRANSCRIPT

Read More 


Sister Carol Keehan on Health Law Enrollment Challenges this Year


Video 3:00

A new Alliance for Health Reform video features Sister Carol Keehan of the Catholic Health Association of the United States addressing the challenges of quickly enrolling millions of Americans for health insurance this fall. Open season begins October 1 of this year, yet she says that up to 85 percent of those who will be newly eligible for Medicaid or for subsidies to buy private insurance in state-based exchanges don't know it.  FULL TRANSCRIPT

Read More 


Jonathan Blum on CMS Efforts to Keep Medicare Spending Growth Down


Video (2:54)

Jonathan Blum, acting principal deputy administrator and director of the Center for Medicare at the Centers for Medicare and Medicaid Services (CMS), addresses the slower growth of Medicare spending over the last few years, and what his agency is doing to try and continue the trend. “There are promising signs that this strategy to change the payment system, to change the payment models, to focus on waste and abuse, is paying off," he said. "We are taking a whole new approach to addressing fraud in the program. Much more data resources, much more on the ground reaction. We have seen dramatic spending declines in areas of spending, such as home health and durable medical supplies that historically fueled lots of the fraud.”  FULL TRANSCRIPT

Read More 


Two Former Medicare Administrators Discuss How to Save the Program


A new Alliance for Health Reform video features two former Medicare administrators -- Gail Wilensky and Bruce Vladeck -- on their ideas about how to save the program.

Ms. Wilensky, who ran Medicare in a Republican administration, argued for increasing the eligibility age of Medicare for future retirees, while still making the program available at age 65 for those who are disabled.

Watch at http://www.youtube.com/watch?v=GQjsfam9-w0

Read More 


Douglas Holtz-Eakin: Health Care Spending Lull Only Temporary


Video (3:11)

A new Alliance for Health Reform video features Douglas Holtz-Eakin of the American Action Forum, and a former director of the Congressional Budget Office, arguing that recent slower spending growth in health care won’t continue.

"We also saw a slowdown in the mid-90s, and we all declared victory and it came right back. I think next year we’ll see a noticeable uptick. There will be lots of new people entering the insurance markets because of the exchanges and the subsidies that come along with them, and those subsidies are very generous. … These are an invitation for people to get coverage and to buy more health care. I think that’ll place a lot of pressure on spending."

FULL TRANSCRIPT

Read More 

Marketplace Enrollment Helpers Toolkit


Beginning October 1, insurance marketplaces open for enrollment, and millions of people will be eligible to purchase plans. To guide them in the application process, the federal government has invested in programs to train community organizations and hired staff.

Read More 

The Employer Mandate of the Patient Protection and Affordable Care Act


The Toolkit, available here, details the ACA’s employer requirements and penalty. It also includes information about the delay in the mandate to 2015, and analysis about its impact on employer-based coverage.

Read More 

Toolkit: Replacing the SGR


A new Alliance for Health Reform Toolkit summarizes the recent policy debate surrounding the decade-long problem In the last six months, the House Energy and Commerce Committee, House Ways and Means, and Senate Finance committees all put forth similar bills to repeal and reform the flawed Medicare physician payment formula. Further, with the CBO estimating the cost of repeal at $116.5, the lowest since 2006, many health policy experts are speculating that 2014 is the year that policymakers enact a permanent change to the SGR.

Read More 

Toolkit: Training the Workforce for a Changing Health System


A new Alliance for Health Reform toolkit addresses concerns about whether newly-trained physicians are adequately prepared for today's evolving health care delivery system. Does training adequately emphasize care coordination, team-based care, costs of care, health information technology, cultural competence and quality improvement? Does it encourage students to practice in a primary care setting?

Read More 

Copyright 1997-2014 Alliance for Health Reform
1444 Eye Street, NW, Suite 910 Washington, DC 20005-6573      202-789-2300      202-789-2233 fax      info@allhealth.org      Sitemap